Participant satisfaction with a preference-setting tool for the return of individual research results in pediatric genomic research

The perceived benefit of return of individual research results (IRR) in accordance to participants’ preferences in genomic biobank research is unclear. Parents were randomized to the hypothetical scenario that their child was enrolled in 1 of 4 biobanks with different policies for return of IRR: “No...

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Pubblicato in:J Empir Res Hum Res Ethics
Autori principali: Holm, Ingrid A., Iles, Brittany R., Ziniel, Sonja I., Bacon, Phoebe L., Savage, Sarah K., Christensen, Kurt D., Weitzman, Elissa R., Green, Robert C., Huntington, Noelle L.
Natura: Artigo
Lingua:Inglês
Pubblicazione: 2015
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Article
Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC6686662/
https://ncbi.nlm.nih.gov/pubmed/26376753
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1177/1556264615599620
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