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Parents’ Preferences for Return of Results in Pediatric Genomic Research

PURPOSE: To ascertain parental preferences for the return of genetic research results on themselves and their children and their choices for genetic research results to receive. METHODS: A mail survey was sent to 6,874 families seen at Boston Children’s Hospital. The survey included questions assess...

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Detalhes bibliográficos
Main Authors: Ziniel, Sonja, Savage, Sarah K., Huntington, Noelle, Amatruda, Jonathan, Green, Robert C., Weitzman, Elissa R., Taylor, Patrick, Holm, Ingrid A.
Formato: Artigo
Idioma:Inglês
Publicado em: 2014
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC4073487/
https://ncbi.nlm.nih.gov/pubmed/24642506
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1159/000358539
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