The Beliefs, Motivations, and Expectations of Parents Who Have Enrolled Their Children in a Genetic Biorepository

PURPOSE: Little is known about parental attitudes toward return of individual research results (IRRs) in pediatric genomic research. The aim of this study was to understand the views of the parents who enrolled their children in a genomic repository in which IRRs will be returned. METHODS: We conduc...

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Bibliographic Details
Main Authors: Harris, Erin D., Ziniel, Sonja I., Amatruda, Jonathan G., Clinton, Catherine M., Savage, Sarah K., Taylor, Patrick L., Huntington, Noelle L., Green, Robert C., Holm, Ingrid A.
Format: Artigo
Language:Inglês
Published: 2012
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Article
Online Access:https://ncbi.nlm.nih.gov/pmc/articles/PMC3763713/
https://ncbi.nlm.nih.gov/pubmed/22241099
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/gim.2011.25
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