The Beliefs, Motivations, and Expectations of Parents Who Have Enrolled Their Children in a Genetic Biorepository

PURPOSE: Little is known about parental attitudes toward return of individual research results (IRRs) in pediatric genomic research. The aim of this study was to understand the views of the parents who enrolled their children in a genomic repository in which IRRs will be returned. METHODS: We conduc...

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Библиографические подробности
Главные авторы: Harris, Erin D., Ziniel, Sonja I., Amatruda, Jonathan G., Clinton, Catherine M., Savage, Sarah K., Taylor, Patrick L., Huntington, Noelle L., Green, Robert C., Holm, Ingrid A.
Формат: Artigo
Язык:Inglês
Опубликовано: 2012
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Article
Online-ссылка:https://ncbi.nlm.nih.gov/pmc/articles/PMC3763713/
https://ncbi.nlm.nih.gov/pubmed/22241099
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/gim.2011.25
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