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The Beliefs, Motivations, and Expectations of Parents Who Have Enrolled Their Children in a Genetic Biorepository

PURPOSE: Little is known about parental attitudes toward return of individual research results (IRRs) in pediatric genomic research. The aim of this study was to understand the views of the parents who enrolled their children in a genomic repository in which IRRs will be returned. METHODS: We conduc...

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Bibliographische Detailangaben
Hauptverfasser: Harris, Erin D., Ziniel, Sonja I., Amatruda, Jonathan G., Clinton, Catherine M., Savage, Sarah K., Taylor, Patrick L., Huntington, Noelle L., Green, Robert C., Holm, Ingrid A.
Format: Artigo
Sprache:Inglês
Veröffentlicht: 2012
Schlagworte:
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC3763713/
https://ncbi.nlm.nih.gov/pubmed/22241099
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/gim.2011.25
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