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Preferences for the return of individual results from research on pediatric biobank samples

Discussions about disclosing individual genetic research results include calls to consider participants’ preferences. In this study, parents of Boston Children’s Hospital patients set preferences for disclosure based on disease preventability and severity, and could exclude mental health, developmen...

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Foilsithe in:J Empir Res Hum Res Ethics
Main Authors: Christensen, Kurt D., Savage, Sarah K., Huntington, Noelle L., Weitzman, Elissa R., Ziniel, Sonja I., Bacon, Phoebe L., Cacioppo, Cara N., Green, Robert C., Holm, Ingrid A.
Formáid: Artigo
Teanga:Inglês
Foilsithe: 2017
Ábhair:
Rochtain Ar Líne:https://ncbi.nlm.nih.gov/pmc/articles/PMC5407299/
https://ncbi.nlm.nih.gov/pubmed/28421887
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1177/1556264617697839
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