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Preferences for the return of individual results from research on pediatric biobank samples
Discussions about disclosing individual genetic research results include calls to consider participants’ preferences. In this study, parents of Boston Children’s Hospital patients set preferences for disclosure based on disease preventability and severity, and could exclude mental health, developmen...
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| Publicado no: | J Empir Res Hum Res Ethics |
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| Main Authors: | , , , , , , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
2017
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5407299/ https://ncbi.nlm.nih.gov/pubmed/28421887 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1177/1556264617697839 |
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