Expectation versus Reality: The Impact of Utility on Emotional Outcomes after Returning Individualized Genetic Research Results in Pediatric Rare Disease Research, a Qualitative In...

Por Cacioppo, Cara N., Chandler, Ariel E., Towne, Meghan C., Beggs, Alan H., Holm, Ingrid A.
Publicado no PLoS One (2016)

Preferences for the return of individual results from research on pediatric biobank samples

Por Christensen, Kurt D., Savage, Sarah K., Huntington, Noelle L., Weitzman, Elissa R., Ziniel, Sonja I., Bacon, Phoebe L., Cacioppo, Cara N., Green, Robert C., Holm, Ingrid A.
Publicado no J Empir Res Hum Res Ethics (2017)

Family Health History Reporting is Sensitive to Small Changes in Wording

Por Conway-Pearson, Liam S., Christensen, Kurt D., Savage, Sarah K., Huntington, Noelle L., Weitzman, Elissa R., Ziniel, Sonja I., Bacon, Phoebe, Cacioppo, Cara N., Green, Robert C., Holm, Ingrid A.
Publicado no Genet Med (2016)