Participant satisfaction with a preference-setting tool for the return of individual research results in pediatric genomic research

The perceived benefit of return of individual research results (IRR) in accordance to participants’ preferences in genomic biobank research is unclear. Parents were randomized to the hypothetical scenario that their child was enrolled in 1 of 4 biobanks with different policies for return of IRR: “No...

Deskribapen osoa

Gorde:
Xehetasun bibliografikoak
Argitaratua izan da:J Empir Res Hum Res Ethics
Egile Nagusiak: Holm, Ingrid A., Iles, Brittany R., Ziniel, Sonja I., Bacon, Phoebe L., Savage, Sarah K., Christensen, Kurt D., Weitzman, Elissa R., Green, Robert C., Huntington, Noelle L.
Formatua: Artigo
Hizkuntza:Inglês
Argitaratua: 2015
Gaiak:
Article
Sarrera elektronikoa:https://ncbi.nlm.nih.gov/pmc/articles/PMC6686662/
https://ncbi.nlm.nih.gov/pubmed/26376753
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1177/1556264615599620
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