Participant satisfaction with a preference-setting tool for the return of individual research results in pediatric genomic research

The perceived benefit of return of individual research results (IRR) in accordance to participants’ preferences in genomic biobank research is unclear. Parents were randomized to the hypothetical scenario that their child was enrolled in 1 of 4 biobanks with different policies for return of IRR: “No...

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Publicado en:J Empir Res Hum Res Ethics
Autores principales: Holm, Ingrid A., Iles, Brittany R., Ziniel, Sonja I., Bacon, Phoebe L., Savage, Sarah K., Christensen, Kurt D., Weitzman, Elissa R., Green, Robert C., Huntington, Noelle L.
Formato: Artigo
Lenguaje:Inglês
Publicado: 2015
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Article
Acceso en línea:https://ncbi.nlm.nih.gov/pmc/articles/PMC6686662/
https://ncbi.nlm.nih.gov/pubmed/26376753
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1177/1556264615599620
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