Return of individual research results: What do participants prefer and expect?

Newer data platforms offer increased opportunity to share multidimensional health data with research participants, but the preferences of participants for which data to receive and how is evolving. Our objective is to describe the preferences and expectations of participants for the return of indivi...

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Publicat a:PLoS One
Autors principals: Sayeed, Sabina, Califf, Robert, Green, Robert, Wong, Celeste, Mahaffey, Kenneth, Gambhir, Sanjiv Sam, Mega, Jessica, Patrick-Lake, Bray, Frazier, Kaylyn, Pignone, Michael, Hernandez, Adrian, Shah, Svati H., Fan, Alice C., Krüg, Sarah, Shaack, Terry, Shore, Scarlet, Spielman, Susie, Eckstrand, Julie, Wong, Charlene A.
Format: Artigo
Idioma:Inglês
Publicat: Public Library of Science 2021
Matèries:
Research Article
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC8320928/
https://ncbi.nlm.nih.gov/pubmed/34324495
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1371/journal.pone.0254153
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