Return of individual research results: What do participants prefer and expect?

Newer data platforms offer increased opportunity to share multidimensional health data with research participants, but the preferences of participants for which data to receive and how is evolving. Our objective is to describe the preferences and expectations of participants for the return of indivi...

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Shranjeno v:
Bibliografske podrobnosti
izdano v:PLoS One
Main Authors: Sayeed, Sabina, Califf, Robert, Green, Robert, Wong, Celeste, Mahaffey, Kenneth, Gambhir, Sanjiv Sam, Mega, Jessica, Patrick-Lake, Bray, Frazier, Kaylyn, Pignone, Michael, Hernandez, Adrian, Shah, Svati H., Fan, Alice C., Krüg, Sarah, Shaack, Terry, Shore, Scarlet, Spielman, Susie, Eckstrand, Julie, Wong, Charlene A.
Format: Artigo
Jezik:Inglês
Izdano: Public Library of Science 2021
Teme:
Research Article
Online dostop:https://ncbi.nlm.nih.gov/pmc/articles/PMC8320928/
https://ncbi.nlm.nih.gov/pubmed/34324495
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1371/journal.pone.0254153
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