Research participants’ experiences with return of genetic research results and preferences for web‐based alternatives

BACKGROUND: While there is increasing interest in sharing genetic research results with participants, how best to communicate the risks, benefits and limitations of research results remains unclear. METHODS: Participants who received genetic research results answered open and closed‐ended questions...

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Detalhes bibliográficos
Publicado no:Mol Genet Genomic Med
Main Authors: Gaieski, Jill B., Patrick‐Miller, Linda, Egleston, Brian L., Maxwell, Kara N., Walser, Sarah, DiGiovanni, Laura, Brower, Jamie, Fetzer, Dominique, Ganzak, Amanda, McKenna, Danielle, Long, Jessica M., Powers, Jacquelyn, Stopfer, Jill E., Nathanson, Katherine L., Domchek, Susan M., Bradbury, Angela R.
Formato: Artigo
Idioma:Inglês
Publicado em: John Wiley and Sons Inc. 2019
Assuntos:
Original Articles
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC6732272/
https://ncbi.nlm.nih.gov/pubmed/31376244
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/mgg3.898
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