Research participants’ experiences with return of genetic research results and preferences for web‐based alternatives

BACKGROUND: While there is increasing interest in sharing genetic research results with participants, how best to communicate the risks, benefits and limitations of research results remains unclear. METHODS: Participants who received genetic research results answered open and closed‐ended questions...

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Bibliografiske detaljer
Udgivet i:Mol Genet Genomic Med
Main Authors: Gaieski, Jill B., Patrick‐Miller, Linda, Egleston, Brian L., Maxwell, Kara N., Walser, Sarah, DiGiovanni, Laura, Brower, Jamie, Fetzer, Dominique, Ganzak, Amanda, McKenna, Danielle, Long, Jessica M., Powers, Jacquelyn, Stopfer, Jill E., Nathanson, Katherine L., Domchek, Susan M., Bradbury, Angela R.
Format: Artigo
Sprog:Inglês
Udgivet: John Wiley and Sons Inc. 2019
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Original Articles
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC6732272/
https://ncbi.nlm.nih.gov/pubmed/31376244
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/mgg3.898
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