Parents’ Attitudes toward Consent and Data Sharing in Biobanks: A Multi-Site Experimental Survey

BACKGROUND: The factors influencing parents’ willingness to enroll their children in biobanks are poorly understood. This study sought to assess parents’ willingness to enroll their children, and their perceived benefits, concerns, and information needs under different consent and data sharing scena...

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Detalhes bibliográficos
Publicado no:AJOB Empir Bioeth
Main Authors: Antommaria, Armand H. Matheny, Brothers, Kyle B., Myers, John A., Feygin, Yana B., Aufox, Sharon A., Brilliant, Murray H., Conway, Pat, Fullerton, Stephanie M., Garrison, Nanibaa’ A., Horowitz, Carol R., Jarvik, Gail P., Li, Rongling, Ludman, Evette J., McCarty, Catherine A., McCormick, Jennifer B., Mercaldo, Nathaniel D., Myers, Melanie F., Sanderson, Saskia C., Shrubsole, Martha J., Schildcrout, Jonathan S., Williams, Janet L., Smith, Maureen E., Clayton, Ellen Wright, Holm, Ingrid A.
Formato: Artigo
Idioma:Inglês
Publicado em: 2018
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Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC6354766/
https://ncbi.nlm.nih.gov/pubmed/30240342
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1080/23294515.2018.1505783
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