A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States

PURPOSE: In 2011, an Advanced Notice of Proposed Rulemaking proposed that de-identified human data and specimens be included in biobanks only if patients provide consent. The National Institutes of Health Genomic Data Sharing policy went into effect in 2015, requiring broad consent from almost all r...

Popoln opis

Shranjeno v:
Bibliografske podrobnosti
izdano v:Genet Med
Main Authors: Garrison, Nanibaa' A., Sathe, Nila A., Antommaria, Armand H. Matheny, Holm, Ingrid A., Sanderson, Saskia C., Smith, Maureen E., McPheeters, Melissa L., Clayton, Ellen W.
Format: Artigo
Jezik:Inglês
Izdano: Nature Publishing Group 2016
Teme:
Systematic Review
Online dostop:https://ncbi.nlm.nih.gov/pmc/articles/PMC4873460/
https://ncbi.nlm.nih.gov/pubmed/26583683
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/gim.2015.138
Oznake: Označite
Brez oznak, prvi označite!

Podobne knjige/članki