A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States

PURPOSE: In 2011, an Advanced Notice of Proposed Rulemaking proposed that de-identified human data and specimens be included in biobanks only if patients provide consent. The National Institutes of Health Genomic Data Sharing policy went into effect in 2015, requiring broad consent from almost all r...

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Detalhes bibliográficos
Publicado no:Genet Med
Main Authors: Garrison, Nanibaa' A., Sathe, Nila A., Antommaria, Armand H. Matheny, Holm, Ingrid A., Sanderson, Saskia C., Smith, Maureen E., McPheeters, Melissa L., Clayton, Ellen W.
Formato: Artigo
Idioma:Inglês
Publicado em: Nature Publishing Group 2016
Assuntos:
Systematic Review
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC4873460/
https://ncbi.nlm.nih.gov/pubmed/26583683
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/gim.2015.138
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