Conducting a large, multi-site survey about patients’ views on broad consent: challenges and solutions

BACKGROUND: As biobanks play an increasing role in the genomic research that will lead to precision medicine, input from diverse and large populations of patients in a variety of health care settings will be important in order to successfully carry out such studies. One important topic is participan...

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Veröffentlicht in:BMC Med Res Methodol
Hauptverfasser: Smith, Maureen E., Sanderson, Saskia C., Brothers, Kyle B., Myers, Melanie F., McCormick, Jennifer, Aufox, Sharon, Shrubsole, Martha J., Garrison, Nanibaá A., Mercaldo, Nathaniel D., Schildcrout, Jonathan S., Clayton, Ellen Wright, Antommaria, Armand H. Matheny, Basford, Melissa, Brilliant, Murray, Connolly, John J., Fullerton, Stephanie M., Horowitz, Carol R., Jarvik, Gail P., Kaufman, Dave, Kitchner, Terri, Li, Rongling, Ludman, Evette J., McCarty, Catherine, McManus, Valerie, Stallings, Sarah, Williams, Janet L., Holm, Ingrid A.
Format: Artigo
Sprache:Inglês
Veröffentlicht: BioMed Central 2016
Schlagworte:
Research Article
Online Zugang:https://ncbi.nlm.nih.gov/pmc/articles/PMC5122167/
https://ncbi.nlm.nih.gov/pubmed/27881091
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12874-016-0263-7
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