Conducting a large, multi-site survey about patients’ views on broad consent: challenges and solutions

BACKGROUND: As biobanks play an increasing role in the genomic research that will lead to precision medicine, input from diverse and large populations of patients in a variety of health care settings will be important in order to successfully carry out such studies. One important topic is participan...

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Detalhes bibliográficos
Publicado no:BMC Med Res Methodol
Main Authors: Smith, Maureen E., Sanderson, Saskia C., Brothers, Kyle B., Myers, Melanie F., McCormick, Jennifer, Aufox, Sharon, Shrubsole, Martha J., Garrison, Nanibaá A., Mercaldo, Nathaniel D., Schildcrout, Jonathan S., Clayton, Ellen Wright, Antommaria, Armand H. Matheny, Basford, Melissa, Brilliant, Murray, Connolly, John J., Fullerton, Stephanie M., Horowitz, Carol R., Jarvik, Gail P., Kaufman, Dave, Kitchner, Terri, Li, Rongling, Ludman, Evette J., McCarty, Catherine, McManus, Valerie, Stallings, Sarah, Williams, Janet L., Holm, Ingrid A.
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2016
Assuntos:
Research Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC5122167/
https://ncbi.nlm.nih.gov/pubmed/27881091
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12874-016-0263-7
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