Parents’ Attitudes toward Consent and Data Sharing in Biobanks: A Multi-Site Experimental Survey

BACKGROUND: The factors influencing parents’ willingness to enroll their children in biobanks are poorly understood. This study sought to assess parents’ willingness to enroll their children, and their perceived benefits, concerns, and information needs under different consent and data sharing scena...

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Détails bibliographiques
Publié dans:AJOB Empir Bioeth
Auteurs principaux: Antommaria, Armand H. Matheny, Brothers, Kyle B., Myers, John A., Feygin, Yana B., Aufox, Sharon A., Brilliant, Murray H., Conway, Pat, Fullerton, Stephanie M., Garrison, Nanibaa’ A., Horowitz, Carol R., Jarvik, Gail P., Li, Rongling, Ludman, Evette J., McCarty, Catherine A., McCormick, Jennifer B., Mercaldo, Nathaniel D., Myers, Melanie F., Sanderson, Saskia C., Shrubsole, Martha J., Schildcrout, Jonathan S., Williams, Janet L., Smith, Maureen E., Clayton, Ellen Wright, Holm, Ingrid A.
Format: Artigo
Langue:Inglês
Publié: 2018
Sujets:
Article
Accès en ligne:https://ncbi.nlm.nih.gov/pmc/articles/PMC6354766/
https://ncbi.nlm.nih.gov/pubmed/30240342
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1080/23294515.2018.1505783
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