No Panacea: Next-Gen Sequencing Will Not Mitigate Adoptees' Lack of Genetic Family Health History

Por Fullerton, Stephanie M.
Publicado no Am J Bioeth (2016)

Transdisciplinary Approaches to Understanding and Eliminating Ethnic Health Disparities: Are We on the Right Track?

Por Knerr, Sarah, Fullerton, Stephanie M.
Publicado em 2012

Secondary uses and the governance of de-identified data: Lessons from the human genome diversity panel

Por Fullerton, Stephanie M, Lee, Sandra S-J
Publicado em 2011

Returning pleiotropic results from genetic testing to patients and research participants

Por Kocarnik, Jonathan M., Fullerton, Stephanie M.
Publicado em 2014

Genomics is failing on diversity

Por Popejoy, Alice B., Fullerton, Stephanie M.
Publicado no Nature (2016)

Research Guidelines in the Era of Large-scale Collaborations: An Analysis of Genome-wide Association Study Consortia

Por Austin, Melissa A., Hair, Marilyn S., Fullerton, Stephanie M.
Publicado em 2012

Looking for Trouble and Finding It

Por Trinidad, Susan B., Fullerton, Stephanie M., Burke, Wylie
Publicado no Am J Bioeth (2015)

Patient safety in genomic medicine: an exploratory study

Por Korngiebel, Diane M., Fullerton, Stephanie M., Burke, Wylie
Publicado no Genet Med (2016)

Forensic familial searching: scientific and social implications

Por Garrison, Nanibaa’ A., Rohlfs, Rori V., Fullerton, Stephanie M.
Publicado em 2013

dbGaP data access requests: A call for greater transparency

Por Walker, Lorelei, Starks, Helene, West, Kathleen M., Fullerton, Stephanie M.
Publicado em 2011

Offering Aggregate Results to Participants in Genomic Research: Opportunities and Challenges

Por Beskow, Laura M., Burke, Wylie, Fullerton, Stephanie M., Sharp, Richard R.
Publicado em 2012

Beneficence, clinical urgency, and the return of individual research results to relatives

Por Fullerton, Stephanie M., Trinidad, Susan Brown, Jarvik, Gail P., Burke, Wylie
Publicado em 2012

What are our AIMs? Interdisciplinary Perspectives on the Use of Ancestry Estimation in Disease Research

Por Yu, Joon-Ho, Taylor, Janelle S., Edwards, Karen L., Fullerton, Stephanie M.
Publicado no AJOB Prim Res (2012)

Rural Mexican-Americans’ perceptions of family health history, genetics, and disease risk: implications for disparities-focused research dissemination

Por Malen, Rachel, Knerr, Sarah, Delgado, Fernanda, Fullerton, Stephanie M., Thompson, Beti
Publicado no J Community Genet (2015)

Population description and its role in the interpretation of genetic association

Por Fullerton, Stephanie M., Yu, Joon-Ho, Crouch, Julia, Fryer-Edwards, Kelly, Burke, Wylie
Publicado em 2010

Meeting the Governance Challenges of Next-Generation Biorepository Research

Por Fullerton, Stephanie M., Anderson, Nicholas R., Guzauskas, Greg, Freeman, Dena, Fryer-Edwards, Kelly
Publicado em 2010

Awareness of federal regulatory mechanisms relevant to community-engaged research: survey of health disparities-oriented NIH-funded investigators

Por Fullerton, Stephanie M., Anderson, Emily E., Cowan, Ketch, Malen, Rachel C., Brugge, Doug
Publicado no J Empir Res Hum Res Ethics (2014)

Allocation of Resources to Communication of Research Result Summaries: Biobank Participant Perspectives

Por Richards, Julie E., Bane, Emmi, Fullerton, Stephanie M., Ludman, Evette J., Jarvik, Gail
Publicado no J Empir Res Hum Res Ethics (2016)

Genomic Research and Wide Data Sharing: Views of Prospective Participants

Por Trinidad, Susan Brown, Fullerton, Stephanie M., Bares, Julie M., Jarvik, Gail P., Larson, Eric B., Burke, Wylie
Publicado em 2010

Informed Consent in Genome-Scale Research: What Do Prospective Participants Think?

Por Trinidad, Susan Brown, Fullerton, Stephanie M., Bares, Julie M., Jarvik, Gail P., Larson, Eric B., Burke, Wylie
Publicado em 2012