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Secondary uses and the governance of de-identified data: Lessons from the human genome diversity panel
BACKGROUND: Recent changes to regulatory guidance in the US and Europe have complicated oversight of secondary research by rendering most uses of de-identified data exempt from human subjects oversight. To identify the implications of such guidelines for harms to participants and communities, this p...
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| Главные авторы: | , |
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| Формат: | Artigo |
| Язык: | Inglês |
| Опубликовано: |
BioMed Central
2011
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| Предметы: | |
| Online-ссылка: | https://ncbi.nlm.nih.gov/pmc/articles/PMC3195203/ https://ncbi.nlm.nih.gov/pubmed/21943371 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1472-6939-12-16 |
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