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Genomic Research and Wide Data Sharing: Views of Prospective Participants

PURPOSE: Sharing study data within the research community generates tension between two important goods: promoting scientific goals and protecting the privacy interests of study participants. The present study was designed to explore the perceptions, beliefs, and attitudes of research participants a...

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Autors principals: Trinidad, Susan Brown, Fullerton, Stephanie M., Bares, Julie M., Jarvik, Gail P., Larson, Eric B., Burke, Wylie
Format: Artigo
Idioma:Inglês
Publicat: 2010
Matèries:
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC3045967/
https://ncbi.nlm.nih.gov/pubmed/20535021
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1097/GIM.0b013e3181e38f9e
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