Parents’ Attitudes toward Consent and Data Sharing in Biobanks: A Multi-Site Experimental Survey

BACKGROUND: The factors influencing parents’ willingness to enroll their children in biobanks are poorly understood. This study sought to assess parents’ willingness to enroll their children, and their perceived benefits, concerns, and information needs under different consent and data sharing scena...

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書誌詳細
出版年:AJOB Empir Bioeth
主要な著者: Antommaria, Armand H. Matheny, Brothers, Kyle B., Myers, John A., Feygin, Yana B., Aufox, Sharon A., Brilliant, Murray H., Conway, Pat, Fullerton, Stephanie M., Garrison, Nanibaa’ A., Horowitz, Carol R., Jarvik, Gail P., Li, Rongling, Ludman, Evette J., McCarty, Catherine A., McCormick, Jennifer B., Mercaldo, Nathaniel D., Myers, Melanie F., Sanderson, Saskia C., Shrubsole, Martha J., Schildcrout, Jonathan S., Williams, Janet L., Smith, Maureen E., Clayton, Ellen Wright, Holm, Ingrid A.
フォーマット: Artigo
言語:Inglês
出版事項: 2018
主題:
Article
オンライン･アクセス:https://ncbi.nlm.nih.gov/pmc/articles/PMC6354766/
https://ncbi.nlm.nih.gov/pubmed/30240342
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1080/23294515.2018.1505783
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