Conducting a large, multi-site survey about patients’ views on broad consent: challenges and solutions

BACKGROUND: As biobanks play an increasing role in the genomic research that will lead to precision medicine, input from diverse and large populations of patients in a variety of health care settings will be important in order to successfully carry out such studies. One important topic is participan...

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Dades bibliogràfiques
Publicat a:BMC Med Res Methodol
Autors principals: Smith, Maureen E., Sanderson, Saskia C., Brothers, Kyle B., Myers, Melanie F., McCormick, Jennifer, Aufox, Sharon, Shrubsole, Martha J., Garrison, Nanibaá A., Mercaldo, Nathaniel D., Schildcrout, Jonathan S., Clayton, Ellen Wright, Antommaria, Armand H. Matheny, Basford, Melissa, Brilliant, Murray, Connolly, John J., Fullerton, Stephanie M., Horowitz, Carol R., Jarvik, Gail P., Kaufman, Dave, Kitchner, Terri, Li, Rongling, Ludman, Evette J., McCarty, Catherine, McManus, Valerie, Stallings, Sarah, Williams, Janet L., Holm, Ingrid A.
Format: Artigo
Idioma:Inglês
Publicat: BioMed Central 2016
Matèries:
Research Article
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC5122167/
https://ncbi.nlm.nih.gov/pubmed/27881091
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12874-016-0263-7
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