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A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States
PURPOSE: In 2011, an Advanced Notice of Proposed Rulemaking proposed that de-identified human data and specimens be included in biobanks only if patients provide consent. The National Institutes of Health Genomic Data Sharing policy went into effect in 2015, requiring broad consent from almost all r...
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| Опубликовано в: : | Genet Med |
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| Главные авторы: | , , , , , , , |
| Формат: | Artigo |
| Язык: | Inglês |
| Опубликовано: |
Nature Publishing Group
2016
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| Предметы: | |
| Online-ссылка: | https://ncbi.nlm.nih.gov/pmc/articles/PMC4873460/ https://ncbi.nlm.nih.gov/pubmed/26583683 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/gim.2015.138 |
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