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HIPAA’s Individual Right of Access to Genomic Data: Reconciling Safety and Civil Rights

In 2014, the United States granted individuals a right of access to their own laboratory test results, including genomic data. Many observers feel that this right is in tension with regulatory and bioethical standards designed to protect the safety of people who undergo genomic testing. This comment...

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Dades bibliogràfiques
Publicat a:Am J Hum Genet
Autor principal: Evans, Barbara J.
Format: Artigo
Idioma:Inglês
Publicat: Elsevier 2018
Matèries:
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC5777935/
https://ncbi.nlm.nih.gov/pubmed/29304376
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.ajhg.2017.12.004
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