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HIPAA’s Individual Right of Access to Genomic Data: Reconciling Safety and Civil Rights
In 2014, the United States granted individuals a right of access to their own laboratory test results, including genomic data. Many observers feel that this right is in tension with regulatory and bioethical standards designed to protect the safety of people who undergo genomic testing. This comment...
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| Veröffentlicht in: | Am J Hum Genet |
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| 1. Verfasser: | |
| Format: | Artigo |
| Sprache: | Inglês |
| Veröffentlicht: |
Elsevier
2018
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| Schlagworte: | |
| Online Zugang: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5777935/ https://ncbi.nlm.nih.gov/pubmed/29304376 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.ajhg.2017.12.004 |
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