APPLaUD: access for patients and participants to individual level uninterpreted genomic data

BACKGROUND: There is a growing support for the stance that patients and research participants should have better and easier access to their raw (uninterpreted) genomic sequence data in both clinical and research contexts. MAIN BODY: We review legal frameworks and literature on the benefits, risks, a...

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Detalhes bibliográficos
Publicado no:Hum Genomics
Principais autores: Thorogood, Adrian, Bobe, Jason, Prainsack, Barbara, Middleton, Anna, Scott, Erick, Nelson, Sarah, Corpas, Manuel, Bonhomme, Natasha, Rodriguez, Laura Lyman, Murtagh, Madeleine, Kleiderman, Erika
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2018
Assuntos:
Review
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC5816450/
https://ncbi.nlm.nih.gov/pubmed/29454384
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s40246-018-0139-5
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