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HIPAA’s Individual Right of Access to Genomic Data: Reconciling Safety and Civil Rights

In 2014, the United States granted individuals a right of access to their own laboratory test results, including genomic data. Many observers feel that this right is in tension with regulatory and bioethical standards designed to protect the safety of people who undergo genomic testing. This comment...

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Podrobná bibliografie
Vydáno v:Am J Hum Genet
Hlavní autor: Evans, Barbara J.
Médium: Artigo
Jazyk:Inglês
Vydáno: Elsevier 2018
Témata:
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC5777935/
https://ncbi.nlm.nih.gov/pubmed/29304376
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.ajhg.2017.12.004
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