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HIPAA’s Individual Right of Access to Genomic Data: Reconciling Safety and Civil Rights
In 2014, the United States granted individuals a right of access to their own laboratory test results, including genomic data. Many observers feel that this right is in tension with regulatory and bioethical standards designed to protect the safety of people who undergo genomic testing. This comment...
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| Pubblicato in: | Am J Hum Genet |
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| Autore principale: | |
| Natura: | Artigo |
| Lingua: | Inglês |
| Pubblicazione: |
Elsevier
2018
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| Soggetti: | |
| Accesso online: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5777935/ https://ncbi.nlm.nih.gov/pubmed/29304376 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.ajhg.2017.12.004 |
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