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HIPAA’s Individual Right of Access to Genomic Data: Reconciling Safety and Civil Rights

In 2014, the United States granted individuals a right of access to their own laboratory test results, including genomic data. Many observers feel that this right is in tension with regulatory and bioethical standards designed to protect the safety of people who undergo genomic testing. This comment...

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Detalhes bibliográficos
Publicado no:Am J Hum Genet
Autor principal: Evans, Barbara J.
Formato: Artigo
Idioma:Inglês
Publicado em: Elsevier 2018
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC5777935/
https://ncbi.nlm.nih.gov/pubmed/29304376
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.ajhg.2017.12.004
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