Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US

Individuals participating in biobanks and other large research projects are increasingly asked to provide broad consent for open-ended research use and widespread sharing of their biosamples and data. We assessed willingness to participate in a biobank using different consent and data sharing models...

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Bibliografiset tiedot
Julkaisussa:Am J Hum Genet
Päätekijät: Sanderson, Saskia C., Brothers, Kyle B., Mercaldo, Nathaniel D., Clayton, Ellen Wright, Antommaria, Armand H. Matheny, Aufox, Sharon A., Brilliant, Murray H., Campos, Diego, Carrell, David S., Connolly, John, Conway, Pat, Fullerton, Stephanie M., Garrison, Nanibaa’ A., Horowitz, Carol R., Jarvik, Gail P., Kaufman, David, Kitchner, Terrie E., Li, Rongling, Ludman, Evette J., McCarty, Catherine A., McCormick, Jennifer B., McManus, Valerie D., Myers, Melanie F., Scrol, Aaron, Williams, Janet L., Shrubsole, Martha J., Schildcrout, Jonathan S., Smith, Maureen E., Holm, Ingrid A.
Aineistotyyppi: Artigo
Kieli:Inglês
Julkaistu: Elsevier 2017
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Article
Linkit:https://ncbi.nlm.nih.gov/pmc/articles/PMC5339111/
https://ncbi.nlm.nih.gov/pubmed/28190457
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.ajhg.2017.01.021
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