Can outcomes in Duchenne muscular dystrophy be improved by public reporting of data?

OBJECTIVE: To review current approaches for obtaining patient data in Duchenne muscular dystrophy (DMD) and consider how monitoring and comparing outcome measures across DMD clinics could facilitate standardized and improved patient care. METHODS: We reviewed annual standardized data from cystic fib...

Full beskrivning

Sparad:
Bibliografiska uppgifter
Huvudupphovsmän: Scully, Michele A., Cwik, Valerie A., Marshall, Bruce C., Ciafaloni, Emma, Wolff, Jodi M., Getchius, Thomas S., Griggs, Robert C.
Materialtyp: Artigo
Språk:Inglês
Publicerad: Lippincott Williams & Wilkins 2013
Ämnen:
Contemporary Issues
Länkar:https://ncbi.nlm.nih.gov/pmc/articles/PMC3589293/
https://ncbi.nlm.nih.gov/pubmed/23382369
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1212/WNL.0b013e318282334e
Taggar: Lägg till en tagg
Inga taggar, Lägg till första taggen!

Liknande verk