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Can outcomes in Duchenne muscular dystrophy be improved by public reporting of data?
OBJECTIVE: To review current approaches for obtaining patient data in Duchenne muscular dystrophy (DMD) and consider how monitoring and comparing outcome measures across DMD clinics could facilitate standardized and improved patient care. METHODS: We reviewed annual standardized data from cystic fib...
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| 主要な著者: | , , , , , , |
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| フォーマット: | Artigo |
| 言語: | Inglês |
| 出版事項: |
Lippincott Williams & Wilkins
2013
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| 主題: | |
| オンライン･アクセス: | https://ncbi.nlm.nih.gov/pmc/articles/PMC3589293/ https://ncbi.nlm.nih.gov/pubmed/23382369 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1212/WNL.0b013e318282334e |
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