Can outcomes in Duchenne muscular dystrophy be improved by public reporting of data?

OBJECTIVE: To review current approaches for obtaining patient data in Duchenne muscular dystrophy (DMD) and consider how monitoring and comparing outcome measures across DMD clinics could facilitate standardized and improved patient care. METHODS: We reviewed annual standardized data from cystic fib...

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Détails bibliographiques
Auteurs principaux: Scully, Michele A., Cwik, Valerie A., Marshall, Bruce C., Ciafaloni, Emma, Wolff, Jodi M., Getchius, Thomas S., Griggs, Robert C.
Format: Artigo
Langue:Inglês
Publié: Lippincott Williams & Wilkins 2013
Sujets:
Contemporary Issues
Accès en ligne:https://ncbi.nlm.nih.gov/pmc/articles/PMC3589293/
https://ncbi.nlm.nih.gov/pubmed/23382369
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1212/WNL.0b013e318282334e
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