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Can outcomes in Duchenne muscular dystrophy be improved by public reporting of data?
OBJECTIVE: To review current approaches for obtaining patient data in Duchenne muscular dystrophy (DMD) and consider how monitoring and comparing outcome measures across DMD clinics could facilitate standardized and improved patient care. METHODS: We reviewed annual standardized data from cystic fib...
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Main Authors: | , , , , , , |
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Formato: | Artigo |
Idioma: | Inglês |
Publicado em: |
Lippincott Williams & Wilkins
2013
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Assuntos: | |
Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC3589293/ https://ncbi.nlm.nih.gov/pubmed/23382369 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1212/WNL.0b013e318282334e |
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