Can outcomes in Duchenne muscular dystrophy be improved by public reporting of data?

OBJECTIVE: To review current approaches for obtaining patient data in Duchenne muscular dystrophy (DMD) and consider how monitoring and comparing outcome measures across DMD clinics could facilitate standardized and improved patient care. METHODS: We reviewed annual standardized data from cystic fib...

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Autores principales: Scully, Michele A., Cwik, Valerie A., Marshall, Bruce C., Ciafaloni, Emma, Wolff, Jodi M., Getchius, Thomas S., Griggs, Robert C.
Formato: Artigo
Lenguaje:Inglês
Publicado: Lippincott Williams & Wilkins 2013
Materias:
Contemporary Issues
Acceso en línea:https://ncbi.nlm.nih.gov/pmc/articles/PMC3589293/
https://ncbi.nlm.nih.gov/pubmed/23382369
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1212/WNL.0b013e318282334e
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