Can outcomes in Duchenne muscular dystrophy be improved by public reporting of data?

OBJECTIVE: To review current approaches for obtaining patient data in Duchenne muscular dystrophy (DMD) and consider how monitoring and comparing outcome measures across DMD clinics could facilitate standardized and improved patient care. METHODS: We reviewed annual standardized data from cystic fib...

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Bibliografske podrobnosti
Main Authors: Scully, Michele A., Cwik, Valerie A., Marshall, Bruce C., Ciafaloni, Emma, Wolff, Jodi M., Getchius, Thomas S., Griggs, Robert C.
Format: Artigo
Jezik:Inglês
Izdano: Lippincott Williams & Wilkins 2013
Teme:
Contemporary Issues
Online dostop:https://ncbi.nlm.nih.gov/pmc/articles/PMC3589293/
https://ncbi.nlm.nih.gov/pubmed/23382369
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1212/WNL.0b013e318282334e
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