Family Experiences with Care for Children with Inherited Metabolic Diseases in Canada: A Cross-Sectional Survey

BACKGROUND AND OBJECTIVE: Children with inherited metabolic diseases often require complex and highly specialized care. Patient and family-centered care can improve health outcomes that are important to families. This study aimed to examine experiences of family caregivers (parents/guardians) of chi...

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Autori principali: Chow, Andrea J., Pugliese, Michael, Tessier, Laure A., Chakraborty, Pranesh, Iverson, Ryan, Coyle, Doug, Kronick, Jonathan B., Wilson, Kumanan, Hayeems, Robin, Al-Hertani, Walla, Inbar-Feigenberg, Michal, Jain-Ghai, Shailly, Laberge, Anne-Marie, Little, Julian, Mitchell, John J., Prasad, Chitra, Siriwardena, Komudi, Sparkes, Rebecca, Speechley, Kathy N., Stockler, Sylvia, Trakadis, Yannis, Walia, Jagdeep S., Wilson, Brenda J., Potter, Beth K.
Natura: Artigo
Lingua:Inglês
Pubblicazione: Springer International Publishing 2021
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Original Research Article
Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC8289623/
https://ncbi.nlm.nih.gov/pubmed/34282509
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s40271-021-00538-8
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