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Scoping review of patient- and family-oriented outcomes and measures for chronic pediatric disease
BACKGROUND: Improvements in health care for children with chronic diseases must be informed by research that emphasizes outcomes of importance to patients and families. To support a program of research in the field of rare inborn errors of metabolism (IEM), we conducted a broad scoping review of pri...
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| Gepubliceerd in: | BMC Pediatr |
|---|---|
| Hoofdauteurs: | , , , , , , , , , , , , , , , , , , , , |
| Formaat: | Artigo |
| Taal: | Inglês |
| Gepubliceerd in: |
BioMed Central
2015
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| Onderwerpen: | |
| Online toegang: | https://ncbi.nlm.nih.gov/pmc/articles/PMC4334411/ https://ncbi.nlm.nih.gov/pubmed/25886474 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12887-015-0323-x |
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