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Child and family experiences with inborn errors of metabolism: a qualitative interview study with representatives of patient groups
BACKGROUND: Patient-centered health care for children with inborn errors of metabolism (IEM) and their families is important and requires an understanding of patient experiences, needs, and priorities. IEM-specific patient groups have emerged as important voices within these rare disease communities...
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| Pubblicato in: | J Inherit Metab Dis |
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| Autori principali: | , , , , , , , , , , , , , , , , , , |
| Natura: | Artigo |
| Lingua: | Inglês |
| Pubblicazione: |
Springer Netherlands
2015
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| Soggetti: | |
| Accesso online: | https://ncbi.nlm.nih.gov/pmc/articles/PMC4710640/ https://ncbi.nlm.nih.gov/pubmed/26209272 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s10545-015-9881-1 |
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