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Experiences of caregivers of children with inherited metabolic diseases: a qualitative study
BACKGROUND: We sought to understand the experiences of parents/caregivers of children with inherited metabolic diseases (IMD) in order to inform strategies for supporting patients and their families. We investigated their experiences regarding the management of disease, its impact on child and famil...
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| Udgivet i: | Orphanet J Rare Dis |
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| Main Authors: | , , , , , , , , , , , , , , , , , , , , , , , , , , , , |
| Format: | Artigo |
| Sprog: | Inglês |
| Udgivet: |
BioMed Central
2016
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| Fag: | |
| Online adgang: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5142351/ https://ncbi.nlm.nih.gov/pubmed/27927250 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-016-0548-2 |
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