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Experiences of caregivers of children with inherited metabolic diseases: a qualitative study
BACKGROUND: We sought to understand the experiences of parents/caregivers of children with inherited metabolic diseases (IMD) in order to inform strategies for supporting patients and their families. We investigated their experiences regarding the management of disease, its impact on child and famil...
Gorde:
| Argitaratua izan da: | Orphanet J Rare Dis |
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| Egile Nagusiak: | , , , , , , , , , , , , , , , , , , , , , , , , , , , , |
| Formatua: | Artigo |
| Hizkuntza: | Inglês |
| Argitaratua: |
BioMed Central
2016
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| Gaiak: | |
| Sarrera elektronikoa: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5142351/ https://ncbi.nlm.nih.gov/pubmed/27927250 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-016-0548-2 |
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