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Effective Recruitment Strategies for a Sickle Cell Patient Registry Across Sites from the Sickle Cell Disease Implementation Consortium (SCDIC)

Sickle cell disease (SCD) is a genetic disorder predominantly affecting people of African descent and is associated with significant morbidity and mortality. To improve SCD outcomes, the National Heart Lung and Blood Institute funded eight centers to participate in the SCD Implementation Consortium....

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Detalhes bibliográficos
Publicado no:J Immigr Minor Health
Main Authors: Masese, Rita V., DeMartino, Terri, Bonnabeau, Emily, Burns, Ebony N., Preiss, Liliana, Varughese, Taniya, Nocek, Judith M., Lasley, Patricia, Chen, Yumei, Davila, Caroline, Nwosu, Chinonyelum, Scott, Samantha, Bowman, Latanya, Gordon, Lauren, Clesca, Cindy, Peters-Lawrence, Marlene, Melvin, Cathy, Shah, Nirmish, Tanabe, Paula
Formato: Artigo
Idioma:Inglês
Publicado em: Springer US 2020
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Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC8032811/
https://ncbi.nlm.nih.gov/pubmed/33034793
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s10903-020-01102-6
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