Publication of data collection forms from NHLBI funded sickle cell disease implementation consortium (SCDIC) registry

BACKGROUND: Sickle cell disease (SCD) is an autosomal recessive blood disorder affecting approximately 100,000 Americans and 3.1 million people globally. The scarcity of relevant knowledge and experience with rare diseases creates a unique need for cooperation and infrastructure to overcome challeng...

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Bibliografski detalji
Izdano u:Orphanet J Rare Dis
Glavni autori: Glassberg, Jeffrey A., Linton, Elizabeth A., Burson, Katrina, Hendershot, Tabitha, Telfair, Joseph, Kanter, Julie, Gordeuk, Victor R., King, Allison A., Melvin, Cathy L., Shah, Nirmish, Hankins, Jane S., Epié, Axel Yannick, Richardson, Lynne D.
Format: Artigo
Jezik:Inglês
Izdano: BioMed Central 2020
Teme:
Research
Online pristup:https://ncbi.nlm.nih.gov/pmc/articles/PMC7341606/
https://ncbi.nlm.nih.gov/pubmed/32635939
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-020-01457-x
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