Publication of data collection forms from NHLBI funded sickle cell disease implementation consortium (SCDIC) registry

BACKGROUND: Sickle cell disease (SCD) is an autosomal recessive blood disorder affecting approximately 100,000 Americans and 3.1 million people globally. The scarcity of relevant knowledge and experience with rare diseases creates a unique need for cooperation and infrastructure to overcome challeng...

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Dades bibliogràfiques
Publicat a:Orphanet J Rare Dis
Autors principals: Glassberg, Jeffrey A., Linton, Elizabeth A., Burson, Katrina, Hendershot, Tabitha, Telfair, Joseph, Kanter, Julie, Gordeuk, Victor R., King, Allison A., Melvin, Cathy L., Shah, Nirmish, Hankins, Jane S., Epié, Axel Yannick, Richardson, Lynne D.
Format: Artigo
Idioma:Inglês
Publicat: BioMed Central 2020
Matèries:
Research
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC7341606/
https://ncbi.nlm.nih.gov/pubmed/32635939
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-020-01457-x
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