Effective Recruitment Strategies for a Sickle Cell Patient Registry Across Sites from the Sickle Cell Disease Implementation Consortium (SCDIC)

Sickle cell disease (SCD) is a genetic disorder predominantly affecting people of African descent and is associated with significant morbidity and mortality. To improve SCD outcomes, the National Heart Lung and Blood Institute funded eight centers to participate in the SCD Implementation Consortium....

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Опубликовано в: :J Immigr Minor Health
Главные авторы: Masese, Rita V., DeMartino, Terri, Bonnabeau, Emily, Burns, Ebony N., Preiss, Liliana, Varughese, Taniya, Nocek, Judith M., Lasley, Patricia, Chen, Yumei, Davila, Caroline, Nwosu, Chinonyelum, Scott, Samantha, Bowman, Latanya, Gordon, Lauren, Clesca, Cindy, Peters-Lawrence, Marlene, Melvin, Cathy, Shah, Nirmish, Tanabe, Paula
Формат: Artigo
Язык:Inglês
Опубликовано: Springer US 2020
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Original Paper
Online-ссылка:https://ncbi.nlm.nih.gov/pmc/articles/PMC8032811/
https://ncbi.nlm.nih.gov/pubmed/33034793
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s10903-020-01102-6
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