Effective Recruitment Strategies for a Sickle Cell Patient Registry Across Sites from the Sickle Cell Disease Implementation Consortium (SCDIC)

Sickle cell disease (SCD) is a genetic disorder predominantly affecting people of African descent and is associated with significant morbidity and mortality. To improve SCD outcomes, the National Heart Lung and Blood Institute funded eight centers to participate in the SCD Implementation Consortium....

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Bibliografiske detaljer
Udgivet i:J Immigr Minor Health
Main Authors: Masese, Rita V., DeMartino, Terri, Bonnabeau, Emily, Burns, Ebony N., Preiss, Liliana, Varughese, Taniya, Nocek, Judith M., Lasley, Patricia, Chen, Yumei, Davila, Caroline, Nwosu, Chinonyelum, Scott, Samantha, Bowman, Latanya, Gordon, Lauren, Clesca, Cindy, Peters-Lawrence, Marlene, Melvin, Cathy, Shah, Nirmish, Tanabe, Paula
Format: Artigo
Sprog:Inglês
Udgivet: Springer US 2020
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Original Paper
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC8032811/
https://ncbi.nlm.nih.gov/pubmed/33034793
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s10903-020-01102-6
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