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Challenges to Informed Consent for Exome Sequencing: A Best-Worst Scaling Experiment

As exome sequencing expands as a diagnostic tool, patients and providers have voiced concerns about communicating the breadth and scope of potential results when obtaining informed consent. This study aimed to understand how genetic counselors prioritize essential components of the informed consent...

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Detalhes bibliográficos
Publicado no:J Genet Couns
Main Authors: Gore, Rachel H, Bridges, John FP, Cohen, Julie S, Biesecker, Barbara B
Formato: Artigo
Idioma:Inglês
Publicado em: 2019
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC7422696/
https://ncbi.nlm.nih.gov/pubmed/31553105
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/jgc4.1171
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