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Challenges to Informed Consent for Exome Sequencing: A Best-Worst Scaling Experiment

As exome sequencing expands as a diagnostic tool, patients and providers have voiced concerns about communicating the breadth and scope of potential results when obtaining informed consent. This study aimed to understand how genetic counselors prioritize essential components of the informed consent...

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Pubblicato in:J Genet Couns
Autori principali: Gore, Rachel H, Bridges, John FP, Cohen, Julie S, Biesecker, Barbara B
Natura: Artigo
Lingua:Inglês
Pubblicazione: 2019
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Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC7422696/
https://ncbi.nlm.nih.gov/pubmed/31553105
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/jgc4.1171
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