Predictive genetic testing of minors: evidence and experience with families

Por Biesecker, Barbara B.
Publicado no Genet Med (2016)

Quality of Life in Rare Genetic Conditions: A Systematic Review of the Literature

Por Cohen, Julie S., Biesecker, Barbara B.
Publicado em 2010

An approach to pediatric exome and genome sequencing

Por Biesecker, Leslie G., Biesecker, Barbara B.
Publicado no Curr Opin Pediatr (2014)

Adaptation to bipolar disorder and perceived risk to children: a survey of parents with bipolar disorder

Por Peay, Holly L, Rosenstein, Donald L, Biesecker, Barbara B
Publicado em 2013

Examination of standardized patient performance: Accuracy and consistency of six standardized patients over time

Por Erby, Lori A.H., Roter, Debra L., Biesecker, Barbara B.
Publicado em 2010

Teaching Genomic Counseling: Preparing the Genetic Counseling Workforce for the Genomic Era

Por Hooker, Gillian W., Ormond, Kelly E., Sweet, Kevin, Biesecker, Barbara B.
Publicado em 2014

Exploration of transitional life events in individuals with Friedreich ataxia: Implications for genetic counseling

Por White, V Brook, Leib, Jennifer R, Farmer, Jennifer M, Biesecker, Barbara B
Publicado em 2010

Expectations and experiences of investigators and parents involved in a clinical trial for Duchenne/Becker muscular dystrophy

Por Peay, Holly L, Tibben, Aad, Fisher, Tyler, Brenna, Ethan, Biesecker, Barbara B
Publicado em 2013

Depression Among Adults with Neurofibromatosis Type 1: Prevalence and Impact on Quality of Life

Por Cohen, Julie S., Levy, Howard P., Sloan, Jennifer, Dariotis, Jacinda, Biesecker, Barbara B.
Publicado no Clin Genet (2015)

Information Topics of Greatest Interest for Return of Genome Sequencing Results among Women Diagnosed with Breast Cancer at a Young Age

Por Seo, Joann, Ivanovich, Jennifer, Goodman, Melody S., Biesecker, Barbara B., Kaphingst, Kimberly A.
Publicado no J Genet Couns (2016)

Factors Associated with Perceived Uncertainty among Parents of Children with Undiagnosed Medical Conditions

Por Madeo, Anne C., O'Brien, Kathleen E., Bernhardt, Barbara A., Biesecker, Barbara B.
Publicado em 2012

Community Involvement in Developing Policies for Genetic Testing: Assessing the Interests and Experiences of Individuals Affected by Genetic Conditions

Por Gollust, Sarah E., Apse, Kira, Fuller, Barbara P., Miller, Paul Steven, Biesecker, Barbara B.
Publicado em 2005

Risk perceptions and worry about common diseases: A between- and within-subjects examination

Por Shiloh, Shoshana, Wade, Christopher H., Roberts, J. Scott, Alford, Sharon Hensley, Biesecker, Barbara B.
Publicado em 2012

On Averages and Peaks: How Do People Integrate Attitudes about Multiple Diseases to Reach a Decision about Multiplex Genetic Testing?

Por Shiloh, Shoshana, Wade, Christopher H., Roberts, J. Scott, Alford, Sharon Hensley, Biesecker, Barbara B.
Publicado em 2012

The Relationship Between the Genetic Counseling Profession and the Disability Community: A Commentary

Por Madeo, Anne C., Biesecker, Barbara B., Brasington, Campbell, Erby, Lori H., Peters, Kathryn F.
Publicado no Am J Med Genet A (2011)

Motivators for participation in a whole-genome sequencing study: implications for translational genomics research

Por Facio, Flavia M, Brooks, Stephanie, Loewenstein, Johanna, Green, Susannah, Biesecker, Leslie G, Biesecker, Barbara B
Publicado em 2011

Genetic Literacy and Patient Perceptions of IBD Testing Utility and Disease Control: A Randomized Vignette Study of Genetic Testing

Por Hooker, Gillian W., Peay, Holly, Erby, Lori, Bayless, Theodore, Biesecker, Barbara B., Roter, Debra L.
Publicado em 2014

Genetic counselors’ implicit racial attitudes and their relationship to communication

Por Schaa, Kendra L, Roter, Debra L, Biesecker, Barbara B, Cooper, Lisa A, Erby, Lori H
Publicado no Health Psychol (2015)

Characterization of Courtesy Stigma Perceived by Parents of Overweight Children with Bardet-Biedl Syndrome

Por Hamlington, Barbara, Ivey, Lauren E., Brenna, Ethan, Biesecker, Leslie G., Biesecker, Barbara B., Sapp, Julie C.
Publicado no PLoS One (2015)

Psychosocial and Clinical Factors Associated with Family Communication of Cancer Genetic Test Results Among Women Diagnosed with Breast Cancer at a Young Age

Por Elrick, Ashley, Ashida, Sato, Ivanovich, Jennifer, Lyons, Sarah, Biesecker, Barbara B., Goodman, Melody S., Kaphingst, Kimberly A.
Publicado no J Genet Couns (2016)