Community Involvement in Developing Policies for Genetic Testing: Assessing the Interests and Experiences of Individuals Affected by Genetic Conditions

Because the introduction of genetic testing into clinical medicine and public health creates concerns for the welfare of individuals affected with genetic conditions, those individuals should have a role in policy decisions about testing. Mechanisms for promoting participation range from membership...

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Hlavní autoři: Gollust, Sarah E., Apse, Kira, Fuller, Barbara P., Miller, Paul Steven, Biesecker, Barbara B.
Médium: Artigo
Jazyk:Inglês
Vydáno: © American Journal of Public Health 2005 2005
Témata:
Health Policy and Ethics
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC1449847/
https://ncbi.nlm.nih.gov/pubmed/15623855
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2105/AJPH.2003.025734
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