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Challenges to Informed Consent for Exome Sequencing: A Best-Worst Scaling Experiment

As exome sequencing expands as a diagnostic tool, patients and providers have voiced concerns about communicating the breadth and scope of potential results when obtaining informed consent. This study aimed to understand how genetic counselors prioritize essential components of the informed consent...

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Dades bibliogràfiques
Publicat a:J Genet Couns
Autors principals: Gore, Rachel H, Bridges, John FP, Cohen, Julie S, Biesecker, Barbara B
Format: Artigo
Idioma:Inglês
Publicat: 2019
Matèries:
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC7422696/
https://ncbi.nlm.nih.gov/pubmed/31553105
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/jgc4.1171
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