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Challenges to Informed Consent for Exome Sequencing: A Best-Worst Scaling Experiment

As exome sequencing expands as a diagnostic tool, patients and providers have voiced concerns about communicating the breadth and scope of potential results when obtaining informed consent. This study aimed to understand how genetic counselors prioritize essential components of the informed consent...

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Bibliografiske detaljer
Udgivet i:J Genet Couns
Main Authors: Gore, Rachel H, Bridges, John FP, Cohen, Julie S, Biesecker, Barbara B
Format: Artigo
Sprog:Inglês
Udgivet: 2019
Fag:
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC7422696/
https://ncbi.nlm.nih.gov/pubmed/31553105
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/jgc4.1171
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