Patient Perspective on Acute Intermittent Porphyria with Frequent Attacks: A Disease with Intermittent and Chronic Manifestations

OBJECTIVE: Acute intermittent porphyria is a rare metabolic disorder that affects heme synthesis. Patients with acute intermittent porphyria may experience acute debilitating neurovisceral attacks that require frequent hospitalizations and negatively impact quality of life. Although clinical aspects...

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Publicado no:Patient
Main Authors: Simon, Amy, Pompilus, Farrah, Querbes, William, Wei, Alex, Strzok, Sara, Penz, Craig, Howe, Desiree Lyon, Hungate, Jessica R., Kim, Jae B., Agarwal, Sonalee, Marquis, Patrick
Formato: Artigo
Idioma:Inglês
Publicado em: Springer International Publishing 2018
Assuntos:
Original Research Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC6132435/
https://ncbi.nlm.nih.gov/pubmed/29915990
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s40271-018-0319-3
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