Patient Perspective on Acute Intermittent Porphyria with Frequent Attacks: A Disease with Intermittent and Chronic Manifestations

OBJECTIVE: Acute intermittent porphyria is a rare metabolic disorder that affects heme synthesis. Patients with acute intermittent porphyria may experience acute debilitating neurovisceral attacks that require frequent hospitalizations and negatively impact quality of life. Although clinical aspects...

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Publicat a:Patient
Autors principals: Simon, Amy, Pompilus, Farrah, Querbes, William, Wei, Alex, Strzok, Sara, Penz, Craig, Howe, Desiree Lyon, Hungate, Jessica R., Kim, Jae B., Agarwal, Sonalee, Marquis, Patrick
Format: Artigo
Idioma:Inglês
Publicat: Springer International Publishing 2018
Matèries:
Original Research Article
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC6132435/
https://ncbi.nlm.nih.gov/pubmed/29915990
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s40271-018-0319-3
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